Ringing the Bell
April 11, 2023 Benjamin's first oncology appointment after learning that he was LCH-free. Cancer-free. In remission. Months later I still...
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BENJAMIN THE BRAVE
Follow the adventures of our little superhero as he battles rare disease and cancer, LCH.
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About Benjamin
At the age of 4, Benjamin was diagnosed with Langerhans Cell Histiocytosis (LCH), a rare disease that is also classified as cancer.
Benjamin is truly an inspiring little superhero. He treats every hospital visit like a special adventure and is best known for being happy, positive, kind, affectionate, enthusiastic, inclusive and for the wonderful sense of humour that pairs perfectly with his big smile and contagious laugh.
After his diagnosis my aunt surprised him with a very special superhero cape she'd made. Ever since he's insisted on wearing it to every treatment, surgery, test and appointment.
If you ask him, his super power is saving pets. If you ask me, his mum, his super power is his ability to always, always find the light.
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Fourth CT Scan - REMISSION
Photo from the 2023 SickKids House of Legends campaign On January 24, 2023, nearly one year to the day since Benjamin began chemotherapy...
Scan Day - Fourth CT
January 24, 2023 There were exactly two weeks between round twenty-five of chemo and Benjamin's fourth CT scan. Because his PET scan in...
Round TWENTY-FIVE
January 10, 2023 Benjamin's first chemo treatment of 2023. Our morning started with Benjamin in an uncharacteristically bad mood. David...
NEWSTALK 1010 Radiothon in Support of SickKids
December 15, 2022 Benjamin the Brave talks battling cancer with John Moore on Moore in the Morning: Photos of our morning at the NEWSTALK...
Round TWENTY-FOUR
December 20, 2022 Twenty-four chemo treatments completed in 2022. I'm simultaneously SO proud and full of love for Benjamin and his...
Cottage Christmas Tree Cutting
December 17, 2022
Round TWENTY-THREE
November 29, 2022
'Tis the Season for Triggers
Ever since I can remember I've loved the Christmas season. From the many family traditions, social gatherings, decor, music and finding...
Round TWENTY-TWO
November 8, 2022
Round TWENTY-ONE
October 18, 2022 COMING SOON
Scan Results: Third CT and Second PET
October 14, 2022 Day 10 post-scans. I hadn't slept much in nearly two weeks. My anxiety and emotions were at an all-time high and my...
Scan Day - Third CT and Second PET
Scanxiety. I've written about it before but it's so overwhelming, so all-encompassing that it bears repeating. I can't imagine there will...
Round TWENTY
September 27, 2022 COMING SOON
What Fever Means for a Cancer Patient - Part 3
September 17, 2022 I continued to monitor his temperature throughout the day and it ranged from 37.6 and 38.2. To be on the safe side I...
What Fever Means for a Cancer Patient - Part 2
September 16, 2022 After the previous day's events I woke up hoping that Benjamin's fever had broken. I waited nervously for the numbers...
What Fever Means for a Cancer Patient - Part 1
September 15, 2022 It was just after noon on a perfect sunny September day and I had just come upstairs from switching over the laundry...
Round NINETEEN
September 6, 2022 COMING SOON
Speaking on Behalf of the SickKids Foundation
August 17, 2022 Public speaking has been a longtime fear of mine but earlier in the month I was asked to speak on behalf of the SickKids...
Round EIGHTEEN: Ups and Downs
August 16, 2022 On the drive to SickKids, as Benjamin sat in his carseat, happily playing away with his Transformers and oblivious to us,...
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