"Significant Decrease" of the Cancer BUT...
Ella had been dropped off at school and Mimi had picked up Benjamin so that he could spend the day at her place. David was working at...
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BENJAMIN THE BRAVE
Follow the adventures of our little superhero as he battles rare disease and cancer, LCH.
Home: Welcome
About Benjamin
At the age of 4, Benjamin was diagnosed with Langerhans Cell Histiocytosis (LCH), a rare disease that is also classified as cancer.
Benjamin is truly an inspiring little superhero. He treats every hospital visit like a special adventure and is best known for being happy, positive, kind, affectionate, enthusiastic, inclusive and for the wonderful sense of humour that pairs perfectly with his big smile and contagious laugh.
After his diagnosis my aunt surprised him with a very special superhero cape she'd made. Ever since he's insisted on wearing it to every treatment, surgery, test and appointment.
If you ask him, his super power is saving pets. If you ask me, his mum, his super power is his ability to always, always find the light.
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Waiting is (one of) the Hardest Part(s)
Hearing the words "significant decrease" from Benjamin's oncologist in relation to his cancer following his CT scan was definitely what...
Preliminary CT Scan Results
As I was sitting, writing, wrapping my head around our second CT scan experience I received a call from "SickKids". That's what comes up...
A Picture's Worth 1,000 Words - Post Induction CT Scan
For me, the day started hours before my alarm went off, as they all do whenever we have an appointment at the hospital. My anxiety was...
Round SIX
Round six. The last round of this first (and hopefully last) phase of intensive, weekly chemo. As always, the night before was restless,...
Round FIVE
The night before every chemo treatment is always an anxious one for me and this one was no different, but round five did come with a few...
Round FOUR
Rounds one, two and three of chemo were all very different experiences. The first was long and we received lots of information. We met...
Round THREE
After round two I had a lot of anxiety in the week leading up to round three. As much as I was amazed and relieved that Benjamin had...
Round TWO
Unlike round one, this second round of chemo would be administered by way of Benjamin's two-day-old port. As instructed by the nurse we...
What is a Port and How Does it Work?
Before getting his port, I asked Benjamin's nurse if there was any way that we could see what it would look like once it was implanted...
Port-a-Cath Surgery
Round one of Benjamin's chemotherapy was administered by having an IV line inserted into his hand which we were told was not the ideal...
Round ONE
Benjamin's first round of chemotherapy was scheduled for Thursday, January 20th. While his oncologist submitted an urgent request to get...
Family Fun Before Round One
With the start of at least one year of chemotherapy just around the corner we wanted to give Benjamin a special surprise, something we...
Tests, Results and Treatment
In our last conversation with the oncologist, the one where we learned that Benjamin didn't have a sarcoma but rather a rare disease and...
A Week of Waiting
We knew that the week ahead would be emotionally torturous for the grown ups aware of the situation. Thankfully Benjamin was treating it...
The C-Words: COVID, Christmas and Cancer
In mid November our son, Benjamin, was accidentally kicked in the face at school while playing with his friends. What started out as some...
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